Legal bases of medical care to the citizens having rare (orfanny) diseases (Penza State University, Penza, Russia)

Annotation: In the article the concept of a rare (orfanny) disease used in the Federal law «About bases of health protection of citizens in the Russian Federation» is analyzed. Shortcomings of legal regulation are noted. It is shown that patients with rare diseases — most socially the unprotected citizens needing additional social guarantees of the treatment and rehabilitation.

Authors: Romanovsky G. B. [1]

Tags: biotechnologies1 patient13 prenatal diagnostics1 rare (orfanny) diseases1